Families views on health outcomes: neurodisability

Written by University of Exeter Medical School, CDC, NCB, University of YorkDate 10 Jun 2014

This report summarises the findings from the Children's Outcomes Measurement Study was led by members of the Peninsula Cerebra Research Unit (PenCRU) at the University of Exeter Medical School, the Council for Disabled Children (CDC) at the National Children’s Bureau, and Social Policy Research Unit (SPRU) at the University of York.

The study aimed to find which aspects of health families think are most important to measure as outcomes for children and young people with neurodisability conditions.

The findings showed that children and young people and parents did not talk about single aspects of health on their own and mapped all the relationships between aspects of health and common themes. These maps showed how the different outcomes affected each other, and how they were related.