Key health outcomes for children and young people with neurodisabilities

Written by Amanda Allard, Andrew Fellowes, Valerie Shilling, Astrid Janssens, Bryony Beresford, Christopher MorrisDate 24 Mar 2014

This research was carried out by academic researchers from the Peninsula Cerebra Research Unit for Childhood Disability Research at the University of Exeter supported by researchers from Oxford University, York University and the health policy team at CDC. It sought agreement on what children and young people with neurodisability want from their health care, and what clinicians are aiming to achieve. 

This report summaries the approach adopted by CDC to collect qualitative research on what children, young people and their families felt were the most important outcomes to them. It provides a detailed account of how CDC selected and involved children, young people and their families and the methods that were used to ensure effective engagement and exchange.