The Learning Disabilities Mortality Review Annual Report

This is the first national report of the the Learning Disabilities Mortality Review (LeDeR) programme which covers 1,311 deaths reported during 2016 and 2017. The report provides key information about those who died, such as their characteristics, the cause of their death and whether any of them experienced poor care. 

The LeDeR programme was established to support local areas to review the deaths of people with learning disabilities, identify learning from those deaths, and take forward the learning into service improvement initiatives. The programme is led by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

The programme developed a review process for deaths of people with learning disabilities, and this is the first national report. Key findings include: 

  • Just over half (57%) of the deaths were of males
  • Most people (96%) were single
  • Most people (93%) were of White ethnic
  • Just over a quarter (27%) had mild learning disabilities; 33% had moderate learning disabilities; 29% severe learning disabilities; and
    11% profound or multiple learning disabilities.
  • Approximately one in ten (9%) usually lived alone
  • Approximately one in ten (9%) had been in an out-of-area placement