New Expert Parent Programme: Complex health needs and transition to adulthood

Developing a new Expert Parent Programme: Complex health needs and transition to adulthood

The Council for Disabled Children have received funding from the Together for Short Lives Improving Transition for Young People Fund to develop a bespoke model of the CDC Expert Parent Programme. Once complete, this model will be targeted at parent carers of young people with profound and multiple learning disabilities and palliative care needs, supporting them to prepare for their child’s transition and to get the best out of our health and care system.

The new programme will include information and tools to introduce parent carers to adult services and support them in preparing for their child’s transition. It will be piloted through six workshops in the East of England. CDC is working with partners East Anglia’s Children’s Hospices, St Elizabeth’s Hospice and Haven House Children’s Hospice to recruit parents for these workshops. E-learning modules will be developed to complement the final programme, and will be available from late 2020. Following the pilot workshops a train the trainer session will be developed and delivered to a number of parents who will then be able to go on and deliver the basic training themselves.

More information about this programme to follow ! 

For information on CDC’s original Expert Parent Programme please visit  https://councilfordisabledchildren.org.uk/our-work/whole-child/practice/expert-parent-programme