New Expert Parent Programme: Complex health needs and transition to adulthood

Developing a new Expert Parent Programme: Complex health needs and transition to adulthood

The Council for Disabled Children have received funding from the Together for Short Lives Improving Transition for Young People Fund to develop a bespoke model of the CDC Expert Parent Programme. Once complete, this model will be targeted at parent carers of young people with profound and multiple learning disabilities and palliative care needs, supporting them to prepare for their child’s transition and to get the best out of our health and care system.

The new programme will include information and tools to introduce parent carers to adult services and support them in preparing for their child’s transition. It will be piloted through six workshops in the East of England. CDC is working with partners East Anglia’s Children’s Hospices, St Elizabeth’s Hospice and Haven House Children’s Hospice to recruit parents for these workshops. E-learning modules will be developed to complement the final programme, and will be available from late 2020. Following the pilot workshops a train the trainer session will be developed and delivered to a number of parents who will then be able to go on and deliver the basic training themselves.

First Workshop: Saturday 20th July 2019

The first workshop of the New Expert Parent Programme will take place on Saturday 20th July 2019 in Ipswich. 

This workshop is aimed at the parents and adult family members of children or young people aged 14+, and is part of a new programme funded by the Together for Short Lives Improving Transitions for Young People Fund.
It has been written by parents and is led by experienced trainers who are themselves parent carers.

To find more about the upcoming  workshop and to book a place, please download the Flyer down below


For information on CDC’s original Expert Parent Programme please visit