From 2008 to 2011 EDCM undertook an ongoing qualitative research project with the aim of tracking the impact of the ‘Aiming High for Disabled Children’ short breaks programme on the lives of disabled children and their families in England.
We drew on evidence from parents co-ordinated through a local parent forum, other available data such as local surveys and any other available evidence being gathered. We asked parents to discuss whether they were feeling optimistic or pessimistic about services and support for disabled children and their families.
The purpose of this report is to provide a snapshot of the experience of parents of disabled children in order to highlight examples of good practice and identify possible areas of concern. Our findings do not cover a representative sample, so cannot reflect the progress of the short breaks programme as a whole, but they provide us with real life examples of the way that impact can be made on the ground.