Alström Syndrome UK

Award Winning Charity, Alström Syndrome UK Advancing Diagnosis, Care, Treatment and Support for those living with Alström Syndrome in the UK and throughout Europe

Alström Syndrome UK provides support for those affected by Alström Syndrome, their carers and professionals working with them. They offer help with gaining access to medical assessments with doctors who have gained expertise in understanding the many manifestations of Alström Syndrome. Alström Syndrome UK seeks to raise awareness amongst both the public and medical professions of Alström Syndrome.

Alström Syndrome UK offer:

  • Help with gaining access to medical assessments with doctors who have gained expertise in understanding the many manifestations of Alström Syndrome.
  • Provide quarterly medical screening clinics.
  • Provide pioneering research into this very complex condition
  • Offer help and advice with educational, social and benefit problems.
  • Offer support for families from families who live with Alström Syndrome.
  • Publish a bi-annual newsletter
  • Provide an annual family conference
  • Fundraise for research into Alström Syndrome