What is this study about?
Many children and young people are kept in hospital longer than needed because they can’t get the right support at home. This makes life difficult in a lot of different ways – it can be harder to keep up with schoolwork and stay in touch with friends.
Hospitals in your area have been trying to make it easier for children and young people to get home (or be ‘discharged’) as soon as they’re well enough. We’re trying to work out what difference these changes have made to young people and their families.
CDC want to hear from children who have come home from hospital in the North West in the past two years to understand what this was like.
Why are you doing it?
We will write a report to help the hospitals to decide whether
any more changes are needed, and whether other areas could learn from what’s happening in the North West.
What would I need to do?
You would take part in a focus group meeting, along with 10-15 other young people who have also been in hospital.
To take part, you must:
- be between 12-18 years old at the time of the focus group;
- have spent time in and left hospital within the past two years;
- have been aged 16 or under at the time you left hospital.
The meeting will take place on Friday 18th May 2018 between 4-6pm at:
Ronald McDonald House Hathersage Road Manchester M13 0BH www.rmhc.org.uk/our-houses/manchester
What will I have to talk about?
We will ask you about the time you spent in hospital, how you felt when you were there and what effects it had on your life, and what it was like leaving and coming home again.
You might find it hard to talk about the time you spent in hospital, perhaps because you only left hospital very recently and things are still difficult. Please think carefully about this before deciding whether you feel able to take part.
What information will be collected?
We will record what the group says on a small audio recorder. This is so that our researchers can listen to what you’re saying, and won’t be distracted by taking notes. You can tell us if you don’t want to be recorded or leave the session at any time.
Do I have to take part?
No. It is entirely up to you to decide whether to take part. If you do decide to take part, you can also change your mind at any time. This includes during the focus group meeting – if you don’t want to carry on, you can say so at any time and one of our researchers will accompany you out of the room.
Will you give out my name to anyone?
We will keep your information in confidence. This means we will only tell those who have a need or right to know. Wherever possible, we will not send out information that has your name and address on.
Who are the Council for Disabled Children?
The Council for Disabled Children (CDC) is a charity that works to improve the lives of children and young people with disabilities. Find out more by visiting: https://councilfordisabledchildren.org.uk
How do I get involved?
If you want to take part, or if you or your parents or carer have any questions, you can talk to Sarah at CDC. You can get in touch with her using the details here:
Sarah Hart, Council for Disabled Children, National Children’s Bureau, WeWork, 115 Mare Street, London E8 4RU.
Tel: 07432739030 Email: SHart@ncb.org.uk