Muscular Dystrophy UK

Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. They bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.

Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them.

Since 1959, they’ve been supporting families living with muscle-wasting conditions. Muscular Dystrophy UK provides vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.

Founded in 1959, we have been leading the fight against muscle-wasting conditions since then.

  • Bringing together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 70,000 children and adults in the UK.
  • Supporting high quality research to find effective treatments and cures and won’t stop until they have been found for all muscle-wasting conditions.
  • Leading the drive to get faster access to emerging treatment for families in the UK.
  • Ensuring everyone has the specialist NHS care and support they need – the right help at the right time, wherever they live.
  • Providing a range of services and resources to help people live as independently as possible.

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