Muscular Dystrophy UK is the charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions.
The muscular dystrophies are a group of rare conditions that gradually cause muscles to weaken and waste. They are usually inherited and are caused by changes (mutations) in the genes which are responsible for the structure and function of our muscles. Muscular dystrophies are progressive conditions. This means they will worsen over time. Currently, there is no cure for muscular dystrophy. However, advances are being made in research to find effective treatments.
We support people with muscle weakening and wasting conditions through every stage of their life, from the point of diagnosis to living the best life possible. For over 60 years we have been building our community of individuals living with muscle wasting or weakening conditions, families and carers, scientists, health professionals, supporters, volunteers, and donors.
· We share expert advice and support people to live well now.
· We fund ground breaking research to understand the different conditions better and lead us to new treatments.
· We work with the NHS towards universal access to specialist healthcare.
· Together, we campaign for people’s rights, better understanding, accessibility, and access to treatments.