Spinal Muscular Atrophy UK

We are a UK wide service supporting and empowering families and individuals affected by all forms of SMA. We are advocates for better services and access to new treatments, raise awareness of the condition and help fund and facilitate research related initiatives.

We have a wide range of condition and research related information on our website and are accredited by the NHS England Information Standard. We can be contacted by phone or email and our Outreach Workers also make home visits. We also offer a range of ways to have contact with others who have personal experience and understanding of SMA. 

Our Vision: A world where Spinal Muscular Atrophy is treatable and where anyone affected by any form of SMA receives the support they need.

Our Mission: We are an established charity that supports and empowers anyone affected by Spinal Muscular Atrophy. We are advocates for better services and access to new treatments so that people affected by SMA are empowered and enabled to live full lives. We are committed to help fund and facilitate research and to raise public and professional awareness of SMA. 

Our Guiding Principles: Spinal Muscular Atrophy (SMA) is a complex and rare neuromuscularcondition which affects each individual and family differently. Some face the distress of early bereavement; others face the challenge of disability and obtaining the right support, care and opportunities to enable them to live long and fulfilling lives.

At SMA Support UK we will ensure, both within and outside our SMA Community, that we are sensitive to these different experiences.