This is an Early Support information resources on living without a diagnosis and covers the causes of impairments and conditions, why it is sometimes hard to get a diagnosis, why parent carers want a diagnosis, how you can access support for your child even without a diagnosis, who can help and where you can get further information and support.
Also mentioned are how to get a diagnosis including, what to do if you are not happy, getting the right support and who can help. This includes an understanding of supporting your child’s development, getting financial help/support, getting support for your child’s education. Support is discussed in this paper and what that can mean, meeting other families, local parent carer support groups and national condition support groups.