Expert Parent Programme

The Expert Parent Programme began in 2014, supported by research led by the Every Disabled Child Matters campaign which found that parents and carers of disabled children faced numerous barriers in accessing health services and struggled to navigate the health system.

Developed with funding support from the Department of Health, the Expert Parent Programme drew on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services.

What is it?

The Expert Parent Programme is unique in that it maps out the current health system specifically to the needs of children and young people with disabilities. Through a combination of face-to-face sessions, online modules and web based resources the programme enables parent carers to better understand the health system and provides them with practical tools on how to access it to ensure the best outcomes for their children and young people.

  • Face-to-Face Training: Central to the Expert Training Programme is the Expert Parent Training Course, a 4-hour training session delivered by experienced parent trainers that develops parents’ knowledge and confidence when dealing with the health system.
  • E-learning Modules: The face-to-face training is supported by 3 e-learning modules that explains more about personal health budgets, how the NHS is structured, and how to constructively give feedback.
  • Toolkit of Online Resources: Parents can also access a range of online resources including practical guides to working with health professionals and information on specific health conditions.

I definitely feel more confident, the workshop was very empowering and I’ve made good use of the tools I took away.

Parent carer, workshop attendee