MPS Society (Society for Mucopolysaccharide Diseases)

The MPS Society provides support to families affected by rare genetic conditions. We raise money and awareness of these conditions through fundraising, information, research and support.

The MPS Society is the only UK charity that supports people affected by one of 27 rare diseases.

These diseases are cruel, genetic and life limiting. Our Support team offer a needs led service which is tailored to each individual or family. They bring support to families during times of crisis and are there for as long as they need.

Our vision: for all people affected by our diseases to live the lives they want.

Our mission: to transform lives through specialist knowledge, support and advocacy and research.

Our goals: we are working to ensure all our community have access to:

  • exceptional support and advice

  • world-class clinical care

  • effective treatments.

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