MACS

MACS is the UK's only charity specifically supporting individuals born with Microphthalmia (small underdeveloped eyes), Anophthalmia (no eyes) or Coloboma (cleft of the eye), and their families.

The charity is user led, governed by a committee of members who are either directly affected by the eye conditions or care for those with the conditions. Currently, MACS supports over 1500 members around the UK including children and young people, their parents/carers and adults.

The birth of a child born with one, or sometimes a combination of all three, of these conditions can be devastating and isolating. For many families, there will have been no indication of any problems prior to birth.

Some individuals will have no sight or poor vision in just one eye, others may have a complete absence of eyes. Many children have to undergo the trauma of repeated procedures as they grow, in order to fit prosthetic eyes.

MACS acts as a vital lifeline, enabling parents and children to connect with a community network of people who are also affected and so understand their experience. MACS also provides members with access to a range of essential resources, and gives blind and visually impaired children opportunities to participate in activities which encourage them to live their lives to the fullest.

Support from MACS includes:

  • Emotional and practical peer support
  • A helpline
  • A small grants scheme for specialist equipment, activities and services
  • Resources and advice on prosthetic eye treatments
  • Regional events and activities
  • An annual Members’ Weekend
  • Confidence building activities for children including activity weekends and sailing
  • Respite holidays in disability accessible caravans

External Resources